Brigham is doing pretty good. He has been on high flow nasal oxygen since Monday. He was really getting tired of the nCPAP so the decided to go to high flow. He is much more content with that big tube out of his face. He is still breathing too fast but they are slowly weaning him down on the oxygen. He started out getting 6 liters per day and he is now down to 3. He has to be at least down to 2 in order for me to nurse him and he needs to keep his respiratory rate below 70. I am kind of nervous to nurse him....they keep talking about the risk of aspiration and that just kinda freaks me out. The told me a lactation specialist and an occupational therapist and a nurse will be there to help so that is kind of comforting. After he has nursed well for about 48 hours we will be able to go home.
Yesterday started rough for me. After talking to the nurse I felt like we were going to be here FOREVER. I am really ready to go home and have all of my little family together and back to normal. After a breakdown we decided to take the kids to do something fun. We had some passes to Hollywood Connection in West Valley so we headed up there. The kids had a blast. Millie and Levi loved all the rides. Callie hated them. Josh took Millie and Levi on the bumper cars several times and they all really loved that. Josh and Millie spent the night in West Valley with his parents and then headed back home today. I drove back to my parents house late last night. I had some milk I needed to drop at the hospital and Todd and Ashley were going to come and watch Levi and Callie while I ran inside. My kids were so tired that I almost decided not to stop. I just had to stop though and I am so glad that I did. I don't think I would have been able to live with myself if I knew I had let a whole day go by without seeing my little Brig. He was wide awake when I got there so I held him and cuddled him for a while.
Today I ran over there for a little while. He had been upset and crying so I held him and calmed him down. I had promised Levi that I wouldn't spend too much time there. Poor little Brig started crying again when I put him down. It breaks my heart. I am headed back there tonight to give him and bath and hold him while he gets fed.
I'll post some more pictures soon! I have lots of them.